Trudy S.
I'm from Vienna. I was on the street when Hitler marched in, that was a little scary…actually a lot scary, I was about six. Eventually I became a school guidance counselor and I was very active for a long time.
When the Parkinson's started I wasn't that upset about it because it didn't seem like a lot had happened. I got a little tired but I was always a person who got a little tired. It was my nature. I thought well other people survive it, I'll survive it. It's not like that. In a sense, there's always something more that's going on. Now it's very hard for me to walk. I don't trust myself when it comes to going out on the street. My activities are very limited. I felt as if I was free to go where I wanted to go. Now I feel like I can't.
I don't want to go anywhere with an aide. I want to go by myself, where I want to go, when I want to go. I don't want an aide traveling around with me.
And I haven't played the piano for awhile. It's such torture because I used to play so well. It's a wonderful piano. I'm really sad about not playing. It’s nice of you to try to inspire me. Maybe I'll be inspired.
I have to change the direction of this conversation. I feel very strongly feel that people who have Parkinson's are not getting the right advice, that there isn't enough being done to help them.
I just feel like this is a big problem and it's widespread. I feel like people are neglected. It's a sad commentary.
When the Parkinson's started I wasn't that upset about it because it didn't seem like a lot had happened. I got a little tired but I was always a person who got a little tired. It was my nature. I thought well other people survive it, I'll survive it. It's not like that. In a sense, there's always something more that's going on. Now it's very hard for me to walk. I don't trust myself when it comes to going out on the street. My activities are very limited. I felt as if I was free to go where I wanted to go. Now I feel like I can't.
I don't want to go anywhere with an aide. I want to go by myself, where I want to go, when I want to go. I don't want an aide traveling around with me.
And I haven't played the piano for awhile. It's such torture because I used to play so well. It's a wonderful piano. I'm really sad about not playing. It’s nice of you to try to inspire me. Maybe I'll be inspired.
I have to change the direction of this conversation. I feel very strongly feel that people who have Parkinson's are not getting the right advice, that there isn't enough being done to help them.
I just feel like this is a big problem and it's widespread. I feel like people are neglected. It's a sad commentary.